I’ve recently been asked by Health2.0, a blog based in San Francisco, to write a blog post for their design-themed month.
Co-design in health is the topic that I’ve chosen as this is something I’ve been reading/thinking about quite a lot recently and I’d really appreciate your comments and feedback.
Anyone using design tools and techniques for designing a service needs, at the very first step, to design the process itself.
My new blog post in on MEDLove today and is all about finding the best design process for co-design with patients in the healthcare.
Hope you like it! Glad to hear your comments and thoughts!
‘Good design’ of healthcare services is essentially no different from good design in any sphere.
My second blog post for Med Love
Started today my collaboration with the MEDlove Conference, a conference for all those who see the need for redesigning healthcare and that will be held in Berlin this November.
They have published today the first of three articles I have written about the role of the patients in designing and delivering better healthcare and the importance for the health system to improve patients’ experience.
Personalisation in the health sector: from ‘Mass Production’ to ‘Mass Co-production’ is my first one.
I really hope you’ll enjoy it.
Looking forward to receiving your feedback and comments.
29th February – International Rare Disease Day
Since May last year I have been working on this interesting project to co-design a Route Map for 2 specific genetic rare diseases: ALD – Adrenoleukodystrophy and AMN – Adrenomyeloneuropathy.
The Route Map for ALD and AMN is a user led research project to create a repository of information and knowledge about two specific rare diseases. This Route Map intends to provide a comprehensive resource to be used by patients, families and health and social care professionals.
A rare disease is defined by the European Union as one that affects less than 5 in 10,000 of the general population.
Adrenoleukodystropy and Adrenomyloneuropathy are so “quite rare” diseases, as they affect 1 in 20,000.
When I started working on this project I knew almost nothing about rare diseases, like everyone else.
I have learned a lot from this experience and not just from a professional point of view.
I have realised that
Very interesting video from the London Sustainability Jam blog
Did you already know that:
- 1 in 17 people will develop a rare condition at some point during their life
- There are 30 million people affected throughout EU
- In the UK 3,5 million people will be affected by a rare disorder at some point in their life time
- There are over 6000 recognised rare conditions each with different symptoms and prognose
from Rare Disease UK
Unless you or someone in your family is affected by a rare condition, I can assume your answer will be “No”.
There is such little information and awareness, even among doctors and specialists, about rare conditions for the simple reason that they are so rare!
..and ten ways to make the best of it.
So, enjoy the reading:
Ten Big Questions about the Big Society
…and if you are interested, don’t miss tomorrow Pat Kane lunchtime seminar at The young Foundation
Speak out for Nazziwa!
“Deep down I felt, if the police had acted fast, Nazziwa would have her arms” – Nazziwa’s father.
Please, act fast! Send your messages to Nazziwa (via ActionAid) in time for International Women’s Day.
Spread the voice, thank you!
